On Friday, April 5, 2024, the Renal Lifecycle symposium took place in Utrecht, the Netherlands. The symposium covered the state of the
Investigating the protection of heart and kidneys in patients with severe kidneyfailure
Experiences with participation in the study
Information about experiences with research participation is extremely important. That is why the Dutch Kidney Patients Association (NVN) has been closely involved in this study from the very beginning. To further improve the experiences of participating in the Renal Lifecycle study, the NVN, in collaboration with researchers from the Renal Lifecycle study, has developed a questionnaire to better capture these experiences. With this, we hope to gather input from as many different patient perspectives as possible and ensure that the study aligns optimally with the needs of participants. Thank you very much in advance for your cooperation!
Participating in a study is not something to be taken lightly
To ensure that we meet the needs of participants, we regularly consult with a patient panel. These are patients who take part in the study and are involved in sharing their own experiences, for example, by suggesting what should be included in a newsletter or how new participants can best be recruited. This input is extremely valuable for researchers. You can read more about this in the news item “NVN Advisory Board for Scientific Research” at the bottom of this page, and watch the interview with Ron Gansevoort and Robert Flipsen.
New participating countries
The study is already running internationally. For example, Australia and Germany are already taking part. But there is growing interest: in addition to Belgium, which will start soon, Spain and Singapore will also be joining the study. In this way, we hope to include more participants, which will allow us to predict outcomes even more accurately. This also demonstrates that the study is expected to deliver solid and useful results that can actually be applied in healthcare.
Timeline
Belgium started including patients April 2025 |
1250 participants screened worldwide 1 February 2025 |
Germany has randomized 250 participants as agreed upon April 2024 |
750 participants screened worldwide April 2024 |
Renal lifecycle symposium Utrecht 5 April 2024 |
First participant in Australia October 2023 |
First participant in Germany April 2023 |
25th Participant included in UMCG March 2023 |
First participant randomized 1 October 2022 |
Start trial UMCG 12 September 2022 |
Participating centers worldwide
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Numbers of participants worldwide
Below is an overview of participants so far from study start. On the bottom bar the time, on the left bar the number of participants screened. The colors indicate the countries involved. The numbers are participants from all patient subgroups in all participating centers in that country added up.
Here is an overview of the participants by subgroup. The colors indicate which subgroup is involved. The numbers are participants of all patients in that subgroup from all participating countries added up.
News
The Renal Lifecycle research has made national television! In a broadcast of the program Koffietijd (on 28-10-2022) Professor Ron Gansevoort gave information
The October issue of Wisselwerking, the membership magazine of the NVN, features an interview with Drs. Heleen Nijmeijer, trial coordinator of the