De Renal Lifecycle studie zoekt naar een gezondere toekomst
To protect your privacy, we code the data and body materials collected. There is a unique code for each participant. The key to the code is kept in a secure location by your local researcher and is not shared with third parties. When we process your data and body materials, we always use only that code. Even in reports and articles about the study, no one can trace back that it was about you.
Who can see your data? Some people can see your name and other personal data without a code. These are people who check whether the researchers are conducting the research properly and reliably. People working at, for example, the Healthcare and Youth Inspectorate (IGJ) and the European Medicines Agency (EMA) can see your data. These persons will keep your data confidential. We ask you to give permission for this access.
All research data (the results and retrieved data) are used only for the Renal Lifecycle study. We do not give anyone your medical information.
Your data and your (remaining) bodily material may also be important for other scientific research in the field of kidney failure and heart failure after the end of this study. For this purpose, your data and body material will be kept for 25 years. In the consent form, you will indicate whether you approve of this. This retention period is set by law for conducting scientific research. After this, all data will be destroyed.